Hello and welcome to Spooncast, a new blog for anyone who has, or is interested to find out more about what it’s like to have, a chronic energy-limiting condition.
I’m Sophie, I’m 33 and I’ve had ME, otherwise known as chronic fatigue syndrome (CFS), since I was 17. (For the sake of simplicity, in all future posts I’ll refer to it as ME/CFS). I’m also a GP, although this blog will be light on medical jargon and is aimed at non-medics and medics alike. In fact, it’s for anyone who wants to create, have fun and live life to the full despite significantly restricted energy levels making it very hard to do so!
Over the coming months, I’ll be collaborating with other people who have chronic, energy-limiting conditions to talk about how we can make the best of life when we have to constantly monitor and ration our activity. It’s a game, a tough one, and I’m still learning how to play it. Hopefully, we can have some fun sharing our experiences in as positive a way as possible.
So the name, Spooncast…well, some of you may already be familiar with the term ‘spoonie’. If not, it’s definitely worth reading Christine Miserandino’s brilliant ‘Spoon Theory’ post on her blog, But You Don’t Look Sick? I think it really hits the nail on the head.
That’s the Spoon bit explained, anyway. The rest refers to the eventual podcast, which is coming in early 2014. I’ll be chatting with fellow spoonies about various aspects of life on low battery power. There may be cooking, dating tips and terrible songs. You have been warned.
Follow me on Twitter @sophabed or email me firstname.lastname@example.org
Oh, and in case it’s not already painfully obvious, this is the first time I’ve made a blog. Please be kind to me.
Save your spoons for the stuff that matters.